Twin to Twin Transfusion Syndrome (TTTS) is a rare but life-threatening condition that affects around 15% of identical twins that share a placenta (monochorionic twins). TTTS can also occur in triplet or higher order pregnancies.
When we first set up our TTTS appeal there was too little research being conducted into the most effective treatments for TTTS in the short or long term. We partnered with St George’s Hospital and other fetal medicine centres throughout the UK to set up a UK wide registry of all TTTS pregnancies, their treatment and their outcomes. This research is helping to build a true picture of TTTS cases in the UK and the survival rates for them. This invaluable data will support future ongoing research into TTTS including the longer term consequences of individual treatments. Eventually, we would like to be able to replicate this internationally so all families of twins, triplets or more receive the best possible care and support.
With your help we managed to raise the initial £30,000 target to get the TTTS registry up and running which was a UK first and is the most practical way of driving improvements in the long term for our families.
There are continuing running costs associated with the registry and we are hoping to extend the registry to cover other TTTS complications such as TAPS and TRAPS. We couldn’t have come this far without your support, please help us continue by supporting our TTTS appeal. Your ongoing fundraising for our TTTS appeal is greatly appreciated.